Background Information and Support Groups

The resources below provide more background information on biliary atresia and have been compiled for your convenience. Although we are careful about the links we post, we are not responsible for the information they provide.

Cincinnati Children’s Hospital
The Cincinnati Children’s Hospital website provides basic information on biliary atresia, including causes, symptoms, diagnosis, treatment, and long-term outlook.

Canadian Liver Foundation
The Canadian Liver Foundation has been promoting research and education into the causes, diagnoses, prevention and treatment of all liver disease for over 40 years. Click here to see their page on biliary atresia.

The Children’s Hospital of Philadelphia
The Children’s Hospital of Philadelphia website has information on biliary atresia, an FAQ section, and resources for families.

The Hospital for Sick Children – Learn About BA App
SickKid’s hospital in Toronto has developed an excellent biliary atresia app available for free through Apple or Android. The app has introductory and more advanced information on the Kasai, post-Kasai treatment, emergency symptoms, and liver transplants. The app includes helpful diagrams and videos.

The Children’s Liver Disease Foundation
The Children’s Liver Disease Foundation has some great information and resources for parents and children on living with liver disease.

Biliary Atresia Awareness and Research (BAAR)
Biliary Atresia Awareness and Research is a non-profit organization which was founded in February 2012 by 16- year old Natalie Williams and her family. BAAR aims to raise awareness of Biliary Atresia amongst front-line health professionals and parents, reduce stigma, promote organ donation, and raise funds for further awareness and research activities. To learn more about this campaign, visit BAAR’s Facebook page and website.

Liver Families
Liver Families is an online forum connecting families from around the world that have been impacted by pediatric liver disease and liver transplant.

Perinatal Services BC Biliary Atresia Screening Program
Perinatal Services BC is encouraging new parents to screen for biliary atresia at home through the BC infant stool colour card screening program. Download the stool colour card here.

Johns Hopkins Stool Colour Guide and Mobile App
The Children’s Hopsital at Johns Hopkins’ stool colour overview has information on normal and abnormal stool colour. The page links to a stool colour guide and their stool colour mobile app.

Adult Survivors of Biliary Atresia
A facebook page intended to connect adults living with biliary atresia and provide a forum to share their stories.

Biliary Atresia Network
An online support group for families affected by biliary atresia.